fine

We are doing fine. Ryan is good. His infusion went well this past week. We had a semi-busy weekend. Movie on saturday, it was horrible. I dont like the movie but when its free, heck, ya just go. Then off to nap land. That was great, then to church and dinner afterwards. Sunday we didnt do anything. I was nice. Last night Ryan just played in his room and I was able to sit in the living room and be quiet for a while. It was lovely. Not much else to report. We have busy weekends for the next 2 months. So see everyone in June. :)

NIce

We has a mediocre week. I have been pretty busy at work. Lots of stuff coming up and projects that take a lot of time. I really at this point cannot remember much of what happened during the week. Ryan did see the doctor and she put him on another antibiotic for another sinus infection. He had a pretty good asthmas attack and after much sleep, and medicine he is doing much better. I had to work on saturday morning to make up a few hours and Nana came over with her new puppy, Evy. She is toooo cute. Ryan had a blast with her. This morning I had a bag of cereal out of the counter and he asked for the puppy food. I think he thought Evy was here. It was funny.
After his nap we met Lorey, Kaden and Landon at Pekin Park. It turned out to be a wonderful day. The kids played and part way through Ryan had a major time out. He ran from the kids area, across a street and straight towards the lagoon. I was pissed. I put him in time out and then showed him his boundaries. Then we took the kids to the lagoon. They played with sticks and looked at the ducks. Having 3 close to the water is nerve racking. Then we headed to get dinner. All were tired and we headed home afterwards. Got home and played outside until 8pm. Came in, got Ryan in the shower and he was off to bed, so was I. he didnt wake up until almost 7. I was shocked.
Today we havent done much. Went for a walk and did some cleaning. Ryan took a 4 hour nap and i slept for 2. I had to check on him to make sure he was still breathing. LOL. He is going on the potty better. Right now he just inhaled a cup of water and Im giving him 10 minutes and its potty time. We are finally getting back into our routine. The last couple weeks were rough. Hoping we can hit a free movie next weekend. Those are nicec.
WEll not much else going on. Ryan did well with his second home infusion. Third one will be this friday. So much different than IVIG. OK, gonna get things ready for the start of the week. Hope all is well out there. Take care.

Love
Becky

Sleepy

We have had a very long, exhausting week. Started off Tuesday with a trip to St. Jude for Ryan's IVIG. He reacted to the infusion and it was freaky. We ended up being there from 9 to 5pm. We were in bed and up early. He really did well the next morning and then after his nap he was complaining of headache, and tummy hurting. He then started vomiting. YUCK, as Ryan would put it. I did have the doctor call in Zofran. That really helped him tummy and I just kept up with the Motrin for his headache. These are very common side effects of the IVIG. He did really well thursday and went back to school Friday. He doesnt get good naps at school, so he was really tired. Saturday he had his first in home infusion. He was more freaked by what was going on. NO pain. The infusion lasted over an hour and he did really well. No redness but did have to goose eggs on his hips. He didnt complain. We went to lunch and then came home and took 3 hour naps. Woke up at 6pm and were back in bed by 10am. Sunday, we didnt do anything until 1pm. I had to wake him from his nap and he wasnt happy. He has been having sinus problems, different from before IVIG. Almost like hayfever. His poor eye's tear up and he sneezes all the time. Snot is flying everywhere. Poor kid. I feel so bad for him. He feels horrible. I think it will be bad these next few warms days. Im going to have to filter his air. Ill be calling the doctor bright and early. We headed to the Hockey game. Ryan got to drop the puck. He actually went onto the ice all by himself and put the puck on the ice and picked it back up and that was it. I didnt get good pics as a kid was in the way. No one was listening and I just couldnt get a good shot. Oh Well, he also one a jersey and I exchanged it for one to fit him better. $90 worth of jersey. Lucky little turd. So, we are home, he is sleeping, his nose hurts and Im heading to the shower. We have both been very tired and just need rest. Not much happening this week. He will get his next infusion on Friday. This will all become a regular thing. Its just like diabetics. It is a slow infusion but Ive decided to do it on a week day when we arent as busy. There really just isnt a good time since its now getting warm. He is going to fight me on it. I already know it. He will be 3 soon and he gets screened for pre-k 2 days after his bday. Im not having a big party. Just a few of his pals for cake and to play. People have been asking what he wants. He wants to stay the night in a hotel with a pool. LOL. Ok, thats my thing but he would like the pool. LOL

Take care,
Becky

Busy Bee

Boy, I dont even know where to start......
The few days of nice weather where so needed. WE played and it was great. We havent done much. Ryan is working on his colors, shapes and reading. He is very good at spelling out the words. We have been working on the flash cards. He starts school in September, so trying to prepare.
As you may know, he must have therapy for his immune system. We are set for Tuesday at St. Jude for his IV portion of the treatment. His infusions at home will start about a week or two after. The nurse will come to our house and teach me everything. It will be second nature before long. Im praying that this will help him get off the antibiotic and other medications.

We went to a free movie at the threatre this past saturday. We saw Space Chimps. It was stinkn cute. I loved it. I think I enjoyed it more that Ryan. LOL. Then we went to lunch and home for a nap. We didnt go to church and I dont have a good reason why. It was nice to just hang at home. Ryan has been saying his prayers so good.
Nana got a new dog, so Im looking forward to Ryan seeing Evy. I cant wait either. She is 14 weeks and I think she will be good therapy for Ryan and I.
Oma & Opa brought over dinner yesterday. That was nice, especially not to have to cook. Love that.
My neighbor broke her arm after a fall. We took over some salsa. Not that it will make her better but its good. :)
Not much else to report. Lots of prayers are needed for Ryan during his treatment. There can be significant side effects to begin with. Im hoping my prayers will be answered and he will heal his body.

Must work now, Take care.
Love,
Becky and Ryan too.