Sleepy

We have had a very long, exhausting week. Started off Tuesday with a trip to St. Jude for Ryan's IVIG. He reacted to the infusion and it was freaky. We ended up being there from 9 to 5pm. We were in bed and up early. He really did well the next morning and then after his nap he was complaining of headache, and tummy hurting. He then started vomiting. YUCK, as Ryan would put it. I did have the doctor call in Zofran. That really helped him tummy and I just kept up with the Motrin for his headache. These are very common side effects of the IVIG. He did really well thursday and went back to school Friday. He doesnt get good naps at school, so he was really tired. Saturday he had his first in home infusion. He was more freaked by what was going on. NO pain. The infusion lasted over an hour and he did really well. No redness but did have to goose eggs on his hips. He didnt complain. We went to lunch and then came home and took 3 hour naps. Woke up at 6pm and were back in bed by 10am. Sunday, we didnt do anything until 1pm. I had to wake him from his nap and he wasnt happy. He has been having sinus problems, different from before IVIG. Almost like hayfever. His poor eye's tear up and he sneezes all the time. Snot is flying everywhere. Poor kid. I feel so bad for him. He feels horrible. I think it will be bad these next few warms days. Im going to have to filter his air. Ill be calling the doctor bright and early. We headed to the Hockey game. Ryan got to drop the puck. He actually went onto the ice all by himself and put the puck on the ice and picked it back up and that was it. I didnt get good pics as a kid was in the way. No one was listening and I just couldnt get a good shot. Oh Well, he also one a jersey and I exchanged it for one to fit him better. $90 worth of jersey. Lucky little turd. So, we are home, he is sleeping, his nose hurts and Im heading to the shower. We have both been very tired and just need rest. Not much happening this week. He will get his next infusion on Friday. This will all become a regular thing. Its just like diabetics. It is a slow infusion but Ive decided to do it on a week day when we arent as busy. There really just isnt a good time since its now getting warm. He is going to fight me on it. I already know it. He will be 3 soon and he gets screened for pre-k 2 days after his bday. Im not having a big party. Just a few of his pals for cake and to play. People have been asking what he wants. He wants to stay the night in a hotel with a pool. LOL. Ok, thats my thing but he would like the pool. LOL

Take care,
Becky